“Catch them doing something right early and often” – Caregiver Leadership 101

caregiving leadership Mar 14, 2019

So you’ve just hired a caregiver ...

Or maybe you've had someone for a while ...

Or you know someone who relies on a caregiver ...

How do you keep them bringing their best?

Well, consider this obvious fact. Everyone loves to be praised and told they’re doing a good job.

I think that goes without saying.

Some of us might feel a bit uncomfortable when we get a compliment, not really knowing the right thing to say. But we love receiving them, nonetheless.

The problem is that many employers are not really good at giving compliments and pointing out when things go right. And don't forget, you (or your friend) is an employer in this situation.

The tendency is to expect that people will do a good job which means you wind up ignoring those things and focus only on the gaps in their work performance.

Help People Win!

If you’ve ever read any of Ken Blanchard’s writings, you’ll know what I’m talking about.

One of his books is rather brilliant. It’s...

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How do you maintain a balanced relationship with your caregiver?

caregiving Mar 09, 2019

“Hey, Gladys! Get me a beer!”

A friend asked me what would I do if someone in my extended family – let’s call him Uncle Ralph – talked that way to Ben’s caregiver, Gladys.

I was stumped for a moment, since that has never happened.

But it was a good question and highlighted the importance of knowing where the line should be drawn between keeping the relationship with your caregiver friendly but also professional.

Of course, “get me a beer” is way offside regardless of where that line might be.

An Employee

So, first things first. At the end of the day, you need to remember that Gladys is an employee of yours even if you’re not directly responsible for paying her.

This sets up the dynamic of an employer/employee relationship as well as the responsibilities and respectful behaviours that go along with it.

Hopefully, it’s a wonderful relationship where Gladys loves her job, she actually DOES a wonderful job, and your child or...

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WARNING: The Dangers of NOT Hiring a Caregiver

caregiving stress Feb 20, 2019

When Jan and I were thrust into Ben’s world of 24-hour care with no preparation and, of course, no training, we struggled a lot … which really isn’t surprising.

We were off-balance nearly all the time and had little confidence on what to do next.

Strangely, we thought we were the exception. An outlier. So different from the rest of the world.

After all, people weren’t lining up at our door to help us figure things out. We were pretty much left on our own.

When it came to providing round-the-clock care, it all fell to us. And I would say, that’s probably how we wanted it.

He was our son, after all. Our responsibility. It was up to us to provide the care needed.

But as Ben got older, his level of care remained high. Needless to say, that just goes with the territory in the world of disabilities.

It took us a long time to figure out that we couldn’t do this on our own (or maybe it took me a long time).

A Worldwide Issue

What we didn’t realize...

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The top 6 reasons why we accept the human cost of caregiving … but shouldn’t!

caregiving stress Jan 28, 2019

The statistics1 are staggering when it comes to unpaid, family caregivers. Whether it’s providing care to your child with a disability, your aging parent, or some other loved one, the numbers are mind-numbing.

Here’s the deal:

  • 43% say their loved one’s health is more important than their own.
  • 49% experience feelings of depression.
  • 51% don’t have time to exercise.
  • 70% feel tired most of the time.

On top of that, unpaid family caregivers in the U.S. give up $3 trillion (that’s 12 zeroes) per year in wages, pensions and other benefits.2

The scary thing about this is we fell into most of these categories when Ben was young.

We did everything ourselves. 24/7. 365 days/yr.

We didn’t ask for help. We were his parents. His care was our responsibility.

Whenever it was suggested that we should bring in a caregiver to help, we had a million reasons why that wouldn’t work.

  1. We couldn’t afford to pay anyone. Things were extremely tight...
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The downside of hiring a Caregiver

caregiving May 10, 2018

Weird headline, I know, especially coming from me ... when every blog post I’ve published on caregiving has been upbeat and positive about why you absolutely need to bring a great caregiver into your life.

And how this is the key to creating more balance, energy and freedom in your life.

I mean, we even created a best-in-class training course on how to find, hire, and train a great caregiver and nurture a wonderful relationship with them. (Learn more about The Caregiver Support Formula).

So why would I focus on the downside to all of this?

Well, with just about everything in life, there are trade-offs. There is a cost and price related to everything that we do and every decision we make.

The question becomes, is bringing a caregiver into your life worth your time and energy?

Here’s a hint: the answer is a resounding YES!

But you need to be prepared, to understand these “costs” (and I don’t mean monetary), and what you’ll be...

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How did I miss the anxiety that my child was feeling?

caregiving Apr 15, 2018

Having a caregiver in our home brings a certain dynamic to our lives and Ben’s life. Some of it’s good. Some not so good.

One of the things we’ve learned is to “pick our battles” since everyone comes with strengths and weaknesses … and baggage.

It’s a balance. As long as Ben’s caregivers are focused on him and treat him well, that’s really the only criteria. We can live with just about anything else that comes with it.

One of Ben’s caregivers – let’s call her Savannah – had been with us for about 7 years. That’s a long time in “caregiver years”.

Savannah’s greatest strength was her reliability. She always stepped in to fill the gap when other caregivers didn’t work out or quit without notice. And she was willing to do consecutive overnight shifts – a big plus if we ever wanted to get away for a few days.

But she often strolled in late for her shifts, and she...

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What does freedom really look like?

caregiving coping Jan 05, 2018

Earlier today, a friend of mine posted on his Facebook page, “Cruise booked!

I scoffed and rolled my eyes. The only way that would ever happen in my life would be if all the planets and stars aligned.

First, we’d need to book caregivers to cover each day we were away, and that means 24 hours per day, along with a backup plan if one of them couldn’t keep their shift or we got delayed coming home.

Second, we’d need Ben to be healthy leading up to our departure. No seizures. No strange behaviour. Obviously, it would be impossible to predict any of that months in advance.

Third, we’d need a way to get home quickly in an emergency. Floating on the open waters would make cruising just about impossible.

And last but not least, we’d have to be able to afford it. Or rather, is a cruise where we want to spend our money and do we want it bad enough to go through all this prep work?

I have to be honest. My first reaction to reading about his upcoming...

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How to keep your child safe without being annoying

caregiving Dec 15, 2017

Keeping your child safe is a no-brainer. As parents, this is front and centre especially when our children are young.

Safety is also a trump card. How can you argue about not being safe? But if exploited, it can be used to create fear and uncertainty.

Here’s a quick example …

When Ben was in his second year of high school, we pushed to have a structured schedule in place to help him develop his physical skills.

We believed that if we didn’t give him every opportunity to stand and walk, he would never learn how to do either.

I mean, that’s just common sense, right?

How can you learn a skill if you’re never taught and given the opportunity to practice?

But including standing and walking into his daily routine required the expertise of healthcare professionals to assist the school staff.

Unfortunately, most of the therapists we encountered didn’t believe that Ben could ever learn how to do either.

And when it came time to provide any recommendations...

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Why letting go is good for you

caregiving coping Dec 08, 2017

I remember going to our very first appointment to talk about getting a wheelchair for Ben. It was with the Remedial Seating department at the IWK Children’s Hospital in Halifax.

I remember feeling rather unsettled that we had reached that stage with Ben. 

The simple Perego stroller and ethafoam insert wasn’t doing the trick for him anymore. The only realistic option was to transition to a paediatric wheelchair.

But I didn’t want to go there since it was an admission that Ben’s physical disabilities were becoming more complex, and we were losing control.

Somehow it seemed like we had failed.

I didn’t mind our weird looking stroller. Sure, some people stared. But having to use a wheelchair took weirdness to a whole other level, and it would mean just about everyone would be staring at Ben and us, no matter where we went.

We were presented with different types of wheelchairs along with a list of add-ons and options and needed to make some decisions.

...

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The Absolute Best Way to Create a Great Caregiver Relationship

caregiving Nov 02, 2017

We’ve hired a lot of caregivers over the years. I guess when you’re looking at a 25-year run, that’s pretty much how things go.

Some have stayed with us a long time. Some too long. And some haven’t lasted 6 months. Unfortunately, turnover is unavoidable despite best efforts mainly because caregiving is a tough job.

Looking back, I would say that each of Ben’s caregivers brought a slightly different set of skills to the role.  They, also, portrayed different levels of confidence, and brought a different feel to the role.

Some have had a really strong work ethic. These are the keepers. They anticipate what needs to be done and just do it without being asked.

Some have brought a high level of positive energy that is contagious. These people can pick up anyone’s spirits.

Others have faked their way through it. They are good at looking good but they aren’t really engaged or interested in making a difference. They excel at doing the bare...

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